Tuesday 18 November
Half Day Clinical Registries Workshops 1 & 2
9am - 12.30pm
Workshop 1: Advancing Learning Health Systems: The Role Of Clinical Quality Registries And Linked Data
In this half day workshop, participants will learn about the role of innovative digital technology, clinical quality registries and linked data for driving change within the framework of learning health systems.
Our international team comprises facilitators from Canada, the United States and Australia that have led globally significant registry programs and data linkage research. The case study will be presented for the context of stroke. The participants will learn about and discuss:
- The concept of data driven learning health systems and the role of clinical quality registries
- Enabling technologies for near-real time or real-time data feedback
- Advancement of data infrastructure in Australia to support learning health systems
- Governance and involvement of stakeholders
Facilitated by: Professor Moira Kapral (Ontario Stroke Registry), Professor Dominique Cadilhac (Australian Stroke Clinical Quality Registry), Dr Lachlan Dalli (Monash Uni), Professor Monique Kilkenny (Monash Uni) & Miriam Lum On (Australian Institute of Health and Welfare)
Workshop 2: From The Ground Up: A Registry Workshop (Ten Steps. One Scenario. Endless Ideas. Let’s Build!)
Getting a registry set up, established, and matured takes many years. Missing a few foundational steps can hinder a registry’s ability to grow, scale, and deliver long-term value.
Having a clear understanding of the early stages such as developing and articulating a shared purpose, engaging stakeholders effectively, and building the right team can put your registry on the right path from the start.
This will be a workshop with the difference, participants will be presented with fun scenario, practical tools, fresh ideas, and maybe a few laughs to take back to their own registry. As members of a working group, participants will collaboratively work through the ten steps required to establish and implement a registry.
Facilitated by: Tamara Hooper (SAHMRI), Helena Kopunic (RACS) and Kelly Skelton (SAHMRI)
Tuesday 18 November
Half Day Clinical Registries Workshops 3 & 4
1.30pm - 5pm
Workshop 3: Community And Patient-Centred Registries
This workshop will discuss recent efforts to engage consumers in registries.
The workshop will begin with a discussion of consumer engagement with Jessica Roydhouse. The workshop will then discuss consumer engagement in registry governance and how community conversations can help registries meet community and consumer needs, lead by Philippa Scanlon.
The workshop will also discuss a co-designed approach to produce a report card of registry findings for consumers. A consumer representative will discuss engagement from their perspective.
The workshop will feature a robust Q&A session, where audience participation will be strongly encouraged.
Facilitated by: Jessica Roydhouse (UTAS), Philippa Scanlon (UTAS) & Kerri Beckmann (University of South Australia)
Workshop 4: Beyond the Benchmark: Outlier Engagement Strategies
Timely detection and reporting of Outliers is an important deliverable for CQRs as per the ACSQHC Australian Framework for National Clinical Quality Registries 2024.
This workshop will improve your ability to implement strategies designed to support and engage outliers in balancing the governance and community safety imperatives for a contributor that appears statistically different to their peers, together with allowing the opportunity to address data related issues that may have contributed to the findings.* (*McClean, K., et al 2017)
At the end of this workshops, participants will be able to:
- Define what it means to be identified as an outlier and the metrics to detect outlier occurrence
- Discuss communication strategies for outlier engagement
- Design a standardised process to respond to outliers
- Discuss ways to measure and document outlier management impact
Facilitated by: David Pilcher, Shaila Chavan, Marie Pase & Jennifer Hogan
Australian Clinical Trials Alliance
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